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Reply to "Which geneticist at CNMC to evaluate EDS hyper mobility?"
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[quote=Anonymous][quote=Anonymous]yes at 18 they are an adult. You did not realize this?![/quote] This is incorrect for specialists. In fact, my best friend was diagnosed with EDS at a Children’s Hospital as an adult because it was the only local hospital that had an EDF specialist. Just a heads up that they’re opening up an EDS clinic at UVA, which will be state of the art. It’s very difficult to find providers that understand the diagnosis. [/quote]
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