Reply to Seeking GYN recommendations for Lichen Sclerosis Dx

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[quote=Anonymous][quote=Anonymous]She’s an older teen and has been tested for every STD you can think of. All negative. The pediatrician was stumped and the only thing she could come up with was LS. At the time the doc didn’t think it seemed to be good fit for a DX and I didn’t think it to be a good fit either, so it remained a very infrequently occurring mystery. Coincidentally, I’ve been doing some reading about auto-immune conditions and came across LS and gave it more consideration. Im starting to believe that it what it is, but of course, we’ll have the gyn render an opinion and a derm as well. 
Im pretty sure I read that it can occur as children enter puberty when their bodies are dealing with the surges of hormones. Either way, we’ll see what the gyn has to say. Appointment on the very near horizon.

Im open to whatever source you can share regarding the limitation of younger people not really getting LS.[/quote]

My mom has it (a long time to getting the dx). My mom fits the typical profile, in that she had multiple longstanding autoimmune conditions and it set in after menopause.

I thought I had it at one point in my thirties because of persistent night itching, pain, and what seemed like thinning membranes (I also have some autoimmune conditions). My doctor said that even though my mom had it, the odds of me having it at that age were low and she had not seen it in younger women. I can't remember much about it now, but at some point I began to connect the episodes to wearing leggings, especially to not changing out of them fast enough after exercise classes. I also eliminated the use of all pads/pantiliners in case it was an allergy. I can't say for sure that it was related to either but it resolved completely.

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