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Kids With Special Needs and Disabilities
Reply to "Were your friends/family more or less supportive after diagnosis of SN was given? How did you feel??"
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[quote=Anonymous][quote=Anonymous]Not supportive at all. They keep insisting there is nothing wrong with DS and why are you driving to all these therapies?!? DS has Asperger's. Now that DS has an IEP, we only use school services, and DS is doing well - they think DS is "cured" like it was a cold or something... DS has a cousin who is a teenager also diagnosed with AS but in high school. Relatives keep saying they don't think DS has AS b/c he does not present like his cousin specifically cousin has bad eye contact, DS's eye contact is normal. My brother (whose wife and I both think has AS) keeps insisting there is nothing wrong with DS b/c he is a lot like his kids (their school wanted them evaluated but DB refused). According to DB, parallel play is normal for five yr olds... and any social problems come from his kids being "gifted." Obviously, we have a lot of Asperger's and/or tendencies in our family but it did not make it one whit easier when we got the diagnosis. Support from family and friends don't count for much in the long run anyway. We have gotten fantastic support from DS's school and his IEP has made all the difference in the world for DS. Focus on getting help where it counts.[/quote] Oh wow. We get the "nothing wrong" too. Even at his worst, we're talking kicked out of preschool and notorious at the grocery stores, some people just said he's just hitting the terrible 1s, 2s, 3s and boys will be boys. Now that things are much better we get the "see I told you things would be fine." We still get help and he qualifies for an IEP. One neighbor basically accused me of being a tiger mom getting all this help. She has a child the same age who rarely smiles. My kid is happy go lucky, silly and often giggling. Really? You think I'm making him miserable? Before he had language and the ability to do basic things like feed himself he used to cry and scream often. Some people just don't get it and they won't understand unless it hits their own family.[/quote]
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