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Reply to "How to get through a parent’s hospice intact"
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[quote=Anonymous]I just went through this with my mom, OP. It was so, so quick. She had colorectal cancer that had spread. It landed her in the hospital in Feb., and she ended up on hospice as there were no more options. As far as time, what hospice told me is that cancer patients go quick, but other diseases, especially dementia, tend to hang on much longer. They told us at the hospital that she would go quick, but I didn't believe them :( She was so strong and not that old (72). The day she left the hosptial (March 8) she could walk. Two days later, she was bedridden :( Nine days later she passed. I still dont know what to think. We did hospice at home. Your family member will get much better care with in home hospice than putting the family member in a facility, that is, if you or other family members can care. Our nurse came once/day -- hospice isn't 24/7 care with a nurse. Family members have to do A LOT. And I mean A LOT. The hospice team was great -- they noted all of the actively dying stages on point - she passed almost right when they said she would. It is VERY DIFFICULT. This is still really raw for me and I'm still trying to process this. How could my mom go from shopping at Target, eating full meals, WALKING, etc., and a month later, she's nonverbal and bedridden...and then dies. She was skin and bones when she passed and it's so so difficult for me to get that picture out of my head. Its so hard :( If you have Tik Tok, I strongly suggest following one of the hospice nurse creators on there - Hospice Nurse Julie is fantastic. It really helped me know what to expect.[/quote]
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