Reply to Please share your experience with pediatric epilepsy

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I’m not really following what your issue is with the two facilities. Our child started having seizures at eight years old and we have been a patient with childrens. We are very happy with their care.[/quote]

Thanks who did you see?[/quote]

I want to start by saying that I think your experience is going to be dependent upon your child’s type of epilepsy, how complicated it is how frequently you need scan/care and how well it’s being managed by medication. If your child’s epilepsy is being managed ok by medication, then you’re really only going to be seeing your doctor every 3 to 6 months.

When we first went to children’s, it was an emergency type situation with MRI overnight EEG, etc. so we saw many doctors. Our initial doctor was an epileptoligist and he was  very technical in the way they spoke and interacted with us, which was not exactly what we needed when we were scared parents trying to learn about this new condition impacting our child/family. We ended up seeing Dr. Schreiber  for our 3-6 month visits, who works out of both the DC office and Virginia and he is excellent! Very knowledgeable but also has great. “bedside manner“ with kids and parents.[/quote]

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