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[quote=Anonymous]I have a good friend who has PH. As of about a month ago, she now has to be on oxygen 24/7. She and her husband have a 4-year-old daughter and my heart is just aching for them. Vast strides have been made with regard to PH management and prognosis in the last 20 years, and as such, a lot of the research is outdated. Just curious if anyone out there has any experience with this disease. I'm so afraid for my friend and her family, yet she remains hopeful. Apparently there are new drugs that can actually reverse progression of the disease. Seems like a long shot to me since it causes heart damage. Have you had a loved one with this disease? What can I do to help her and her family cope?[/quote]
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