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Reply to "Disclosing to young adult a genetic condition they don't know they have"
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[quote=Anonymous]I will attempt to make a long story short. I am looking for advice on how best to support my mom, who is looking to "right a wrong." My sister, now a young adult, has a genetic disorder that she does not know she has. With this disorder comes a range of "issues," one of which is learning disabilities and my sister did/does know that she has these learning issues when she was growing up in school. My sister does not know of the overarching issue, however, which causes the learning disabilities, in addition to other issues it causes, both emotional and medical. My parents decided when she was a baby (with some backing of her doctors) not to tell my sister of this condition as it would be too confusing for her to understand. My sister is very emotionally immature due to her condition and frankly I still don't feel she is ready to take in this information all at once now, although I would have told her from the start--but it wasn't my place to intervene. So my mom now wants to share this information with my sister but is worried about how best to present it to her. Considering my sister's emotional difficulties, I think it is best to "downplay" the fact that my mother intentionally hid this information from her for all of these years. I think my sister will be, understandably, very upset that the rest of the family knew about this information and yet she didn't. Thoughts and advice? Thanks in advance.[/quote]
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