Reply to Regression after 'intensive' feeding therapy--now what?

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[quote=Anonymous]We just did a one week intensive with our feeding therapist. Ds typically does great with her during weekly visits, though progress is slow. She felt we'd make some good progress if we intensively focused on feeding by meeting for an hour a day for 2 weeks straight. Well, we started this last week and now we are seeing tons of regressions : ( So much so that she recommended we hold off continuing the intensive for now. He was never a good eater--hence the feeding help--but he would eat certain finger foods or foods on a fork with distractions, and would happily drink his pediasure, and has gained well (worked his way up from &lt;1st adjusted age to 20th actual for weight and &lt;1st to 50th for height). Now he is on a total strike except for his crackers and we can get him to eat purees and yogurt with tv/youtube assistance. Everything else that goes in with a fork gets spit out, even go to foods. Plus, he refuses to drink anything. Pediasure, milk, juice, water...anything...and from a  straw, cup, sippy, etc... He has definitely lost weight, is showing signs of dehydration, and is not focusing as well. We have no idea what to do. He never seems hungry or thirsty ever. We've been to see GIs, nutritionists, feeding and OT. I am at a total loss as to what to do short of trying an appetite stimulant (which also scared me since he tends to react poorly to meds--if there is a possible reaction, he tends to have it).

Any suggestions on docs who are helpful with this? It seems like nothing works. All we do is hope things get easier as he gets older and can reason more. Ds has no diagnosis other than being born with severe growth restriction. [/quote]

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