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Reply to "Lymphoma Recs"
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[quote=Anonymous][quote=Anonymous]This sounds terrible, and [b]Hopkins is supposed to be the gold standard.[/b] Have you expressed to them directly that you’re finding this extremely difficult? Maybe part of the problem is that oncology usually takes over with a treatment plan once there is a definitive diagnosis, so in your case it is the pulmonology office who should be taking the lead to get you to biopsy, and they sound like a weak link. But the two offices also need to be in communication with each other, and it sounds like they are not accustomed to working together, which I’m sure is extremely frustrating. But I don’t think I’m fully understanding the barrier. When you talk to the pulmonologist office, are they not able to get you on the schedule for a biopsy? [/quote] I found Hopkins way too disorganized to trust them with my multiple myeloma treatment.[/quote]
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