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[quote=Anonymous]I am going through a Lymphoma work up, long story short, I am the lung mass poster, after waiting for 4 weeks for biopsy results--suspicious for extranodal B cell MALT Lymphoma. I see a rheumatologist and nephrologist at Hopkins and with the lung biopsy now a pulmonary team and oncology are involved. I am very underwhelmed with the lack of coordination of care. Basically next step is larger lung biopsy,  but for example oncology tells me to contact pulmonology myself and ask for attending to do the new biopsy(and not a trainee) vs oncology calling them and saying "hey, this is a large biopsy needed, specifically for lymphoma-we need someone experienced doing this"(pulmonary lymphoma are EXTREMELY rare and the biopsy involved is totally different than a routine one). The pulmonologist who did the routine biopsy one month age is done with his training and no longer at Hopkins. Hopkins isnt even telling me who I would see next for interventional pulmonology. It just seems like no one is advocating for me nor leading this work up, I feel like I am having to constantly work so hard,harder than at my work, harder than anything Ive done before,  this shouldnt be the case. is there any hospital system better coordinated? Venting here I guess......[/quote]

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