Reply to If you were training professionals on how to work with parents of kids with SN..

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[quote=Anonymous]Don't put up or distribute that idiotic "Trip to Holland" story.

If my child cries during every single visit, it's a sign that something isn't right.  It doesn't mean that she doesn't like doctors, although she may not.

Lower your voice.  Please.

Don't call me "Mom."  I'm not your mother.

Be email accessible.

Don't read the chart while I'm talking, especially if you initiated what I'm saying.

Don't send in a medical student  and resident after we've waited two hours and then expect that my child will submit to multiple physical exams or cooperate with you.

Be our advocate.  Get a young SN child the first surgery of the day, even if it means dealing with anesthesia, radiology, and surgery.  Have you dealt with expecting an underweight special needs child to fast until 2:00 in the afternoon (which means 5 by the time of the operation)?

Explain what the goals of the therapy are.  Don't try something different every week hoping it will work.  This is money that we might be taking from other children who don't go on vacation, or get new clothes, or a house payment.

Please be aware that our children go to school, need to go to school, and like going to school.  Scheduling appointments during school time when they could and should be scheduled before/after school is insensitive.  Similarly, we go to work.

Seminars and informational gatherings are great.  They are not great when they are held at 9:00 in the evening when we are exhausted, have to hire babysitters we can't find, and have our children in bed.  Please consider the weekends or mornings.[/quote]

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