Reply to Early Parkinson’s - what’s it like?

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[quote=Anonymous]Op, I'm sorry, this sounds like such a difficult situation. I'm going to try to help best I can.

My family's situation is different because my father was not diagnosed until he was 62 and of course us kids were adults. He lived until passing away at age 80 recently, so he lived a long time with it. There are different expressions of Parkinson's symptoms, for example my dad had very little tremors or shaking. I think pretty much the whole time he had it he was on carbodopa- levodopa. I think now there's a pump that can be used? He was not a candidate for this at the end though.

One thing I would suggest to consider, that if he is ultimately diagnosed with Parkinson's and can start cleaning disability, perhaps you all can move back to where your family is? If you could perhaps get a one story house there and do some minor conversions like grab bars in the bathrooms and ramp outside. I think it's time goes on it would be really helpful for you especially to have that family support. I live a mile from my parents and I gave a lot of support, they moved down south with me and bought a one-story house and that made all the difference for them.

Best wishes, I'd be happy to answer any more questions or at least try to based on my experience.[/quote]

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