Reply to I suspect that I have ankylosing spondylitis. My GP is dismissing me.

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Reply to "I suspect that I have ankylosing spondylitis. My GP is dismissing me. "

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[quote=Anonymous]I have it and was diagnosed four years ago at the age of 39 (I'm a female) by a rheumatologist. She started with x rays for insurance purposes which showed some degenerative properties in my spine. After that she was able to order an MRI, which showed even more and according to her, is a better way to see the properties of AS. I tested positive on the HLA B27 blood test, and my symptoms lined up. I was having a lot of unrelenting pain in my SI Joints (which I originally thought was just lower back pain). I would also have what I called "flare ups" a few times year when my upper back would freeze up, then it was my neck, or my ribcage would hurt or my hips would literally freeze up in pain and I could barely walk for a few days. I did several months of PT which helped just a little.

My rheum then put me on a biologic (Cosentyx) and I've had excellent success with it every since with zero side effects. I can sometimes feel the stiffness and aching in my SI joints when I'm coming near the time I need to take my next injection, but then it goes away right after I inject. I feel so fortunate.

Also, the more I move, the better I feel. If I have a few days of laziness or am sick in bed for whatever reason, I start to stiffen up and feel the pain again. Exercising is the best remedy outside of the biologic.[/quote]

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