Reply to What did Medicaid and other government programs pay for your severely disabled adult child?

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Reply to "What did Medicaid and other government programs pay for your severely disabled adult child?"

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[quote=Anonymous]
OP - I am the poster who shared on adult services funding.  I wanted to tell you that there is now the opportunity to open an account called a 529 ABLE account for your child as you would do for any child planning for the future.  This is a relatively new concept to enable individuals with a disability to save for the future and still qualify for needed benefits.  At this time, there is a cap of $100, 000 in the account and still being able to qualify for basic benefits which I mentioned.  There is an annual deposit limit from all sources of $18,000. (You can save more in the 529 than $100,000, but it would impact benefits.)  You can get information on this kind of  account at the[b][b] National ABLE Resource Center at https://www.ablenrc.org/what-is-able/what-are-able-acounts//b][/b]
This is one vehicle in financial planning for a child with a severe disability as well as a Special Needs Trust.

[b]Summary Outline of Adult Services (Providing supportat age 18 when viewed as "a legal family of one"[/b]
[b]NOTE:[/b] Some services may be established and used at any age including Case Management and Medicaid for children (uusally based on parents finances, but Katie-Beckett Medicaid Waiver is not.)

[b]Case Management[/b] - (Assisting the disabled person to learn about services and how to apply/funded by Medicaid or a sliding fee scale)
-  State agency serving those with a Developmental Disability (DD)/Intellectual Disability ID)  
-  State agency serving those with Mental Health Disability
-  State agency (Center for Independent Living) - serving those with a Physical Disability

[b]Health Insurance[/b]
- Remaining on family health care policy after age 26 (COBRA rule can stretch it to age 29 with individual payment)
- Qualifying for Medicaid health insurance
- Qualifying for Medicare
- Qualifying for Longterm Care Medicaid insurance

[b]Government Financial Programs[/b]  - (Tax free monthly income, with disability criteria to be met and financial resources limits)
- Supplemental Security Income (SSI) 
- Supplemental Security Disability Income (SSDI)

[b]Funding Stream for Adult Services - Medicaid Waivers[/b] (Waivers vary by state, usually have long waiting lists)
[b]NOTE:[/b]  Check to see how soon you can get your child evaluated for a particular waiver to get on the waiting list.
- Personal care, companion care in-home and in the community
- Respite for caregivers
- Adult day programs
- Transportation
- Supported employment
- Residential with varying support up to 24/7 (very limited openings)

[b]Vocational Training and Employment Funds[/b] - (Separate Federal government funding streamseparate from Medicaid Waivers)
[b]NOTE:[/b]  See when a teen can apply as there can be a waiting list.

[b]ABLE Account[/b] - (Vehicle to build savings for the future and still qualify for all benefits)

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