Reply to Infant feeding tube experiences?

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Reply to "Infant feeding tube experiences?"

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[quote=Anonymous]I am sorry you are going through this.

We had a child who was put on the feeding tube due to failure to thrive a decade ago, and it was a very dark time in our lives.  No one in the medical community could help him and kept insisting that he'd continue feeding through the NG tube.  At the same time, the tube wasn't helping him learn to eat either and he looked so uncomfortable.  We knew that if we kept going, he was going to eventually end up being on the G-tube.  At the time, we went through infants and toddlers.  The SLPs there were pretty much helpless, but our PT and OT were great with helping DS stay developmentally on track despite all the issues he had.

We had joined an online parent support group.  We decided to pull the NG tube for a week, started using the Haberman bottle, and monitored extremely closely his intake.  We watched carefully for any sign of dehydration. 
 Thankfully, DS started getting some hungry cues.  I remember he wasn't eating much, but was was producing wet diapers.  I remember we weighed everything and counted every partial CC of intake.  The process was approached as scientific as possible.

That said, my spouse is a doctor so that helps mitigate some fears with the weaning.  I also took a leave of absence off work for a year to focus on getting DS back on track, which we never knew would happen or not happen but had to hold onto some modicum of hope.

I do not know what your child's health situation is and what your hope is of weaning her off the NG tube.  The NG tube for babies is challenging because they get itchy and will try to tear it out of their nose.   
 
Even if you were successful at weaning off the NG tube, it would be very hard to have her at a center.  If she gets sick, it would undo everything.  If possible, I would lean towards trying to get a nanny or even shared one to keep your daughter safe.  This would be the case even if she ends up getting the g-tube.

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