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Reply to "Neurologist recommending anti-seizure meds with no actual seizure yet?"
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[quote=Anonymous][quote=Anonymous]Feeling a bit lost.. anyone here with kids who have epilepsy (or you yourself)? Recently got off the phone with my kid's neurologist. Kiddo had a 72 hour EEG that is showing increased electrical activity. No actual seizure has occurred per the EEG, but there is increased activity, especially during nighttime/sleep. Kiddo has talked about seeing shapes, different colors, glittery objects, and feeling dizzy. Neurologist is recommending anti-seizure medication because they're concerned that if we leave it to watchful waiting, that more areas of the brain could develop abnormal activity which could lead to a more involved, basically scary seizure, especially if it occurs at night and no one is awake to respond. It all feels like things are happening so fast. We're a family who doesn't immediately jump to medications (even for myself, I hate taking Tylenol as frequently as I do). Should we seek a second opinion? Or go with starting medication? We have zero familiarity with epilepsy so we're feeling overwhelmed.[/quote] I have two kids with Epilepsy but we only discovered it after they had seizures. What made you see a neurologist? Personally because it is so difficult to see a second doctor that I would start the medication. It isn't a question of "jumping to medication" for a headache because this is more serious. And I too don't take it right away. But, I would not mess around with my kid. After you start the medication you can get a second opinion but, this way your kid is protected.[/quote]
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