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[quote=Anonymous]1. My mom said “no way” to a hospital bed in her room at home. But a hospital bed can be lowered to make it easy to get into, and now I realize I need to switch out her real bed for a hospital bed. Rookie mistake to not have it set up like that before she returned home.

2. I didn’t have gloves, chucks, briefs and all that stuff. I guess I thought hospice nurse would bring them, but she didn’t.

3. I really had three poor choices. One was to have my mom come home (to Independent Living)  to 24/7 care and go back to the hospital when she got sick or fell. She refused rehab and I don’t blame her because I think her illness has progressed to the point where she won’t regain her mobility. Bad choice two would be to make her go to rehab where she would have PT/OT in an unfamiliar environment and probably still not get strong enough to return to independent living.  Lousy choice three was to enroll her in hospice plus arrange for 24/7 care. Lousy because this means most of the time she is being cared for by strangers. And because hospice feels like it’s basically all still me and my siblings, only one of which lives close to her Independent Living.

So far, does not feel like I chose the right bad choice. She’s not really set up for hospice (wrong bed, lack supplies, 24/7 care by strangers) and I know I’m making more rookie mistakes than just those I’ve mentioned.

What am I missing? What would be helpful?[/quote]

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