Reply to talk to me about late stage Parkinsons

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[quote=Anonymous] PP here-yes, OP, I totally hear you! The denial runs deep. I have to remind myself, that it must be so incredibly difficult to see your spouse since they were 19 and 21, end up in this condition. My mom actually said to me yesterday, 'if Dad keeps getting better we will take a road trip next summer!' ...needless to say that is not possible and there is no 'better', but I just said oh sounds nice.

One thing we probably don't have to worry about with our dads is the agression and agitation. Mine just doesn't have the physical strength for that, and his voice is so quiet now that he can't yell loudly.

The physical things you listed OP are, to my understanding, related to late stage Parkinsons-my dad is amazingly similar. I also do not know if we can realistically take care of him at home always-I do not actually think so, I think what will eventually happen is that something-a fall, pneumonia, will get him hospitalized and then discharged to a facility. But my parents won't consider willingly going to AL or having home help.

I would say-if you are able to get any good moments with your dad, I'd do that-recently me and brother took them to the beach, got a beach wheelchair and Dad really enjoyed that. And yesterday we went for ice cream and he REALLY enjoyed that LOL. We still have the occasional 'good day' which I am grateful for.[/quote]

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