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Reply to "talk to me about late stage Parkinsons"
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[quote=Anonymous]This is the OP, yeah, my dad has been in poor health for years now and so I think they think he will just continue to have health issues like he has has for years and always get better from them. But to me, it seems like the crises now come like every month and everything is generally failing… Digestion, elimination of waste, sleep, blood pressure regulation…Not having a clear diagnosis makes it easy for them to think well, this is just aging, or a temporary illness, rather than the steady progression of a neurological disease that is reaching its final stage, which is what it seems like to me. So far he’s with it mentally, pretty much, even though his powers of concentration and his ability to do anything practical is pretty much gone. But I worry about whether that will continue to be true and whether caring for him at home will even be feasible; What if he becomes agitated, aggressive? We are in about as good as situation as anyone could be in and it still is incredibly stressful and crappy and hard in part because of the uncertainty. Today I floated to my mom the possibility that he might not “get better” And she seemed genuinely surprised. How can this not have occurred to her?! I am continually impressed by the powers of denial.[/quote]
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