Reply to talk to me about late stage Parkinsons

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[quote=Anonymous][quote=Anonymous]This is OP--I can't really have a frank conversation with my dad's doctors in front of him because my parents are in denial. They are expecting my dad to "get better" and do not want to hear otherwise. And what do I know, maybe he will improve somewhat...but lately he hardly gets out of bed. We are alert to the issue of bedsores and the risk of infection/sepsis. [/quote]

Wow, are you me...my dad is in a similar state of Parkinsons and mom thinks he will 'get better'. I'm sorry, I don't think there is improvement at this point-just some stability hopefully.

To my understanding, there are some things that Parkinsons causes that can cause death. Pneumonia from aspiration is one. Falls. Choking. UTI's that can lead to sepsis.

I'm not sure my parents understand or accept that the Parkinsons is late stage now. He's had it for over 15 years and was relatively active up until about 7 years ago. He's got some cognitive impairment, but he is mostly present and aware. I sort of assume that he won't be here in 10 years...although I know according to what I've read it's more like 3-5 years at this stage. Parents refuse home help (other than me or brother) so I assume that eventually something awful will lead to hospitalization (like a fall or uti) and he won't be able to live at home anymore, like, he would be discharged to rehab and then a nursing home.

It's hard OP I know. Crazily enough, outside of the parkinson's, my dad was in relatively good health and probably would have lived to be very old, in fact he's 79 so he has outlived many people already.[/quote]

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