Reply to talk to me about late stage Parkinsons

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[quote=Anonymous][quote=Anonymous]People say "you don't die from Parkinsons, you die with it." My dad has an atypical Parkinsons like syndrome. No one has given us any realistic sense of how to plan for the future, maybe because they are not sure since it is not typical? Has anyone else dealt with this? My dad is in his mid-80's and his health is extremely fragile (regulation of digestive system, blood pressure, sleep, etc is all out of whack, and he's pretty shaky walking around) but mentally he's mostly with it. I'm just trying to plan for the future, with questions like, could he live another 10 years? Will he move beyond home care at some point (we have in-home help now 12 hours a day)? I imagine it's not super easy to get into skilled nursing with no notice, so I'm wondering, should we be getting on waiting lists? Any thoughts, advice from those who have been there/done that would be most appreciated.  [/quote]
There will likely be a precipitating event that will require a change to the status quo.  Unfortunately, you don't know if that event will be soon or in 10 years.  Usually, it comes sooner than they expect.[/quote]

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