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Kids With Special Needs and Disabilities
Reply to "Could you nurse your special needs child?"
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[quote=Anonymous]OP here. Thanks everyone. I've seen some LCs, talked to the OT who is setting him for craniosacral work, etc., and no one knows exactly what the issue is. What we have landed on by default was low tone = low energy and maybe poor mouth coordination. I saw things online about parents with kids who have DS and have trouble BFing in part due to low tone, and it was the most informative thing I found related to DC's issues, so I thought it might be that. I am probably mostly irritated because no one can find a reason. How can there not be a reason?? It's so frustrating! I'm going back to the LC today for what might be the last time. I just don't know what else to do. People kept saying it might improve at 6 Weeks, then 8, then 12. But it hasn't. I was curious about special needs kiss because I read several moms saying their DCs with DS didn't nurse until 5 months, but without a reason,I don't see a point in keeping trying that long!![/quote]
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