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Kids With Special Needs and Disabilities
Reply to "Early signs of CP?"
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[quote=Anonymous]DS is only 10 weeks and meeting all his milestones, but I have a nagging worry he may have CP. Maybe I am just being a paranoid FTM, or maybe I'm actually seeing something. If your LO has CP, did you notice early signs? Is there any point in further exploring this now, or should I just wait and address it if he fails to meet milestones in the future? DS was fulltem and healthy when born (no trauma, all-natural birth). He did not BF well but did it a couple of times successfully, so I was not concerned about his nutrition, but 12 hours after getting home, he was not waking up to eat. We tried everything to rouse him, but he would just yawn and go back to sleep. We called our ped and took him to the ER, where he was admitted to the NICU for feared infection due to low body temp and low resting heart rate. It turned out he was just dehydrated. We went home after 4 days, told he just naturally has a low body temp (runs in my fam) and low heart rate (runs in DH's fam). We have since had a follow-up EKG that was totally normal. He remained hard to wKe up at night t feed but was more alert during the day. We had BFing problems, and it turned out he wasn't getting enough despite long nursing periods (which probably wore him out). We have since not been able to really determine why he can't BF efficiently because my supply is fine. On the bottle, he is much better but niot fast, and he sometimes swallows air (seems to have the suck-swallow-breathe timing a little off at times). We had a tongue tie cut, but it didnt solve the problem. He is now 10 weeks and wKes himself up much better. The worry about the low body temp and not waking himself up, but he also has low muscle tone (told by an OT we saw for feeding). Despite this, he is holding up head well and lifting it well on his tummy. He smiles and interacts very well with people. He has torticollis and seems to favor his left side and hand, but this may be from torticollis. His right hand sometimes is in a fist when the left isn't, and his thumb is inside is fingers on the right fist more than the left, but he does open and use both hands. He started drooling after having the tongue tie cut but mostly does it after meals (maybe due to reflux??). I wonder if he has a swallow issue due to this, or if it's just reflux. At our last appointment, the ped said his head growth was not keeping up at the usual pace but said the initial measurements might have been off. His head was at a normal but smallish size before. He also has a slightly receded jaw but nothing striking. He also pushes up to standing when he's on your lap quite often, maybe due to reflux?? Do these things sound like what you experienced with CP? Am I overeacting? Should I wait and pursue this if he stops meeting milestones, or is it useful to explore earlier?[/quote]
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