Reply to Your thoughts on this opinion piece on Frontal Lobe dementia?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]My sister has it. She also has aphasia like BW. It’s an awful disease. A once tactful, smart, funny person started saying and doing odd things, no filter, etc. We had no idea what was going on at first. She was fired from jobs for being inappropriate and we just couldn’t understand, it was so out of character.

She hasn’t been destructive but as time went on, she started doing things like putting wrong things in the refrigerator, couldn’t use the phone, didn’t understand how to do basic things like shower, was very frustrated and agitated as she progressed into one or two word answers, when she would answer. Lots of just staring at you. She eats a ton because she doesn’t understand when to stop anymore. She has seizures. It’s an awful thing for her kids and husband to see. She was robbed of her life. [/quote]

I’m so sorry, PP. How old was she when it began?[/quote]

Also, is she in a care facility, or at home with family?[/quote]

This is PP. She started showing symptoms mid-40s and was diagnosed with all sorts of mental health issues; it wasn’t until she was 49 that she was correctly diagnosed. She is now 52. She is still at home but has daily care come in. She will most likely soon have to live in a facility, as she is starting to fight care at home and refuse to do lots of things. It is also potentially dangerous because she is around all sorts of things she could grab to hurt herself. I don’t know how much longer her husband can hold on. 
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