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[quote=Anonymous]I wrote awhile back about my mom suffering hospital delirium after general anesthesia for knee surgery back in November.  She went from the hospital to a SNF to home.  Her short term memory was completely shot for about a month after she got home but seems to have been back on track since then.  I see her at least twice a week and try to talk to her every day.  She suffers from primary progressive aphasia but is still able to generally take care of herself.  She’s in independent living and takes her meds, showers, does her own laundry, gets herself to and from meals in the dining room.

Friday I was planning on taking her shopping for summer clothes but before I was able to get over there she called me utterly freaking out so i went over there.  She was almost completely incoherent.  From the two hour conversation with her she basically communicated that she’d done something awful and thought they’d kick her out but she was such a mess she wasn’t able to actually formulate a sentence coherent enough for me to understand what she’d done.  And the place she’s living at never called me so whatever it was must not have been a big deal, if she’d even done anything at all.  Which is highly likely because she’s also apparently been hallucinating.  I was able to get out of her that she hadn’t been sleeping so I figured she just needed some rest.  I put her to bed and went home.  Talked to her very briefly yesterday and she seemed okayish.  But last night she called me all freaked out again and wanted me to come over first thing today which I did.

She was back to babbling and nothing she said made much sense at all so I started getting more and more concerned.  I checked her oxygen levels and she was normal.  I decided to take her to urgent care to check for a UTI but changed plans when she told me that she was having issues seeing out of her right eye.  So to the ER we went.  So far they’ve done CT scans, an EKG, urine sample, COVID test and blood tests.  All the results are normal so far.  She’s being admitted for a brain mri and neurologist review.  And as soon as she’s discharged we’ll head straight to the ophthalmologist.  She’s very unhappy about being admitted, doesn’t like or understand all the things hooked up to her and is mad at me because I didn’t go over in detail for a 75th time every possible scenario of anything that could happen.  I’m planning on staying with her until they get her settled in her room then coming back first thing in the morning.  But I’m already absolutely exhausted.

I don’t know how people do this for an extended period of time.  And I feel awful praying they find something on the MRI so we could at least have a medical explanation for everything.  I’m terrified this is just the progression of her aphasia and this is the new normal.  And I don’t know where to start in terms of getting her into a place that can help her navigate life.  I don’t even know if I need assisted living, skilled nursing or memory care.  This is so overwhelming.
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