Reply to Your thoughts on this opinion piece on Frontal Lobe dementia?

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[quote=Anonymous][quote=Anonymous]It was so frustrating that even experts like my mom’s neurologist was pushing for her to see a therapist to deal with her symptoms (paranoia that my dad was cheating) even though it was becoming obvious that she had some form of dementia. 
The mental health symptoms in more common dementia happen much further along the Alzheimer’s disease trajectory. So once they are seen, it is obviously due to Alzheimer’s. But with FTD, since the main markers for Alzheimer’s like dementia don’t happen until later, and all you see is mental health issues, they have no idea how to deal with it. [/quote]

This is so important to mention. With my mother the paranoia and outbursts came before major memory less. I have had a pretty peaceful relationship with her for over 45 years and yet others believed her when she became paranoid blaming me for everything. Sibling jumped right on that bandwagon. Now I am blocked from knowing anything about her health. She took away the release of info because I called doctors with major concerns. I have lost the support of extended family. Now that I am blocked off, she has outbursts at others, but they just blame me for upsetting her. I have done nothing to her. It is crazy making. Now there are signs short term memory is slowly falling apart, but again now others blame me for stressing her out with all the terrible things rather than assuming it's dementia. I allegedly did. I doubt if she ends up in the hospital I will be able to visit her. I have already mourned her over the years she has slipped into hostility, volatility and paranoia. The person who lives in her body is a stranger who despises me. I have been truly stunned by how neurologists don't even think about the possibility of FTD-behavioral variant and they just jump to psychological only. Perhaps the medicating would be the same-treat the anxiety and paranoia, but maybe I would still have some remnant of a relationship with mom if others knew this was a serious disease talking, not a daughter who suddenly transformed into a totally different person. I can't even imagine at this point ever going to her funeral. I don't want to see all the people who were quick to turn on me, especially the sibling who fed right into it for benefits. I already mourned a parent who went from being a mom to seeing me as enemy number years ago as her descent into insanity began.[/quote]

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