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Kids With Special Needs and Disabilities
Reply to "New autism diagnosis"
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[quote=Anonymous]Hi Mom…welcome to the world of asd parenting. We are a small group but we all understand what you are going through. My first recommendation is to get the ados test. Symptoms you describe are stereotypical autism traits, but sometimes those are caused by anxiety or severe adhd. Get on the list at children's or KKI for a real battery of tests. a lot of us have been in your shoes. You have such anxiety over what his future (and yours)will look like. You want a crystal ball to give you an idea of what to expect. As a mom with an asd level I son who is now approaching teens…Ive been there and STILL wish for that crystal ball. I remember reading this board every day hoping to see some sign of my son in someone elses child's description to find out what his future would look like. what is difficult, is that every child is different. Some kiddos are super easy when they are younger and you hardly see any differences. But as they get older and school and social demands increase, they struggle more. Some don’t. He may be a kid who has no behaviors throughout his childhood, but as soon as puberty hits, he is like a totally different child. I know where you are and understand you don't want to share his diagnosis bc you don’t want to out him in case his autism is extremely mild and people wont notice. If you do further testing and get confirmation, I recommend you be as open as possible with everyone. The reality is as mild as his asd might be, he will still have differences that are noticeable. Being able to have a name to explain those differences makes it SO much easier to navigate friendships and school. Most educated people understands autism these days. some more than others. Personally, I prefer people to understand that my sons differences or the odd things he may say are because of his autism, not because he is a bad behaved child or I have done a bad job parenting. And FYI…even if you don’t tell them, people see the differences and they know. Frankly it is more awkward NOT talking about it with people when there are situations his differences are obvious. You will be amazed at the support you will get and also will learn very quickly who your true friends are. I will be totally honest with you, it is not easy. You will be your sons biggest advocate and cheerleader. Best thing you can do is give him as much early intervention and therapies as possible. Especially early on it makes a huge difference and later on i life if you hit a rough patch, you wont blame yourself and winder if you has done more maybe he would not be struggling like this. This life has its hard moments. but man it has rewards that most parents will never have the opportunity to experience. [/quote]
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