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[quote=Anonymous][quote=Anonymous]My husband's mother was diagnosed with Parkinson's many years ago and he dived into possible treatments - but then he was in medical school, so... My mother was diagnosed with Multiple Sclerosis before I was born, and I don't recall a time when I didn't know - it was just me and my father so obviously I had to help. But also I wanted to! Two very good friends had cancer in their 40s and their teen children were told all the details and were expected to be supportive, which they were and continue to be.

You all need to be on the same team, OP. If your kids don't understand that, I hope you can persuade them that this is important.[/quote]

I came back to say that my 80 something MIL has lived for more than 20 years with Parkinson's and has no cognitive decline that inhibits loving relationships. She has some memory loss, needs to write everything in her planner and some meds make her hallucinate, but we've been able to switch every meds that did for now. Her physical symptoms greatly handicap her - she is a fall risk, uses a walker and is generally quite frail. But there has not been the type of cognitive decline that some patients exhibit, which is both a relief for her caregivers and a torture for herself, since she lives her physical decline while being entirely aware of it.
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