Reply to ISO advice for how to talk with son about his not-so-noticeable disability

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Reply to "ISO advice for how to talk with son about his not-so-noticeable disability"

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[quote=Anonymous]My son is almost three and has a visual disability.  We're unsure at this point what the actual effects will be, but he does have relatively noticeable nystagmus and likely will have reduced vision (will need to sit at the front of class, won't be able to drive, etc.).  I've noticed myself mentioning it to others lately - I think I have a need for people to know for some reason.  Maybe because of the eye shaking being noticeable, maybe because I just want to reach and talk about it.  As he is now getting verbal and more aware of himself and others, I'm worried about mentioning it in front of him and starting to think about how we will "manage" the topic.  Will he be embarrassed if it comes up?  When will he become aware that something is "different" about him and how should I handle those conversations?  How frequently is this something we will talk about or is it just a part of him that we should just let "be" and not focus on?

I'm starting to think about the future and what this means for him mostly from a social and self-esteem perspective and I am really struggling with coming up with a plan.  I'd love to hear how others talk to their children and to other people in their lives about a not-so-noticeable disability.  Thanks for any input and/or suggestions for reading I can do on this topic.

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