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Kids With Special Needs and Disabilities
Reply to "Special Needs Trust - professional trustee or family member?"
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[quote=Anonymous]I serve as the Trustee for my sister's Special Needs Trust. I agree designating a family member is the way to go, but definitely look into services that can help you. Right now, I am doing it myself, but at some point I am going to outsource the day to day work. I found both the Arc and PLAN to be really helpful resources. I do want to share a perspective that I have not seen in the other responses. It is a stressful and exhausting role. My sister has multiple mental health and substance abuse problems which leads her to overspend on a regular basis. I am constantly having to say no to requests for more money. I suspect she has a massive amount of unpaid credit card debt. This is a hard role because while you are responsible for managing the resources in the Trust, it doesn't give you authority to manage the beneficiaries' expenses. You would have to seek guardianship for that. Anyhow, for families considering having your child serve as a Trustee for their sibling, please know this is a very difficult and hard role. I don't think or parents or I really understood what I would be getting into. I know now. [/quote]
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