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Kids With Special Needs and Disabilities
Reply to "Special Needs Trust - professional trustee or family member?"
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[quote=Anonymous]I think you need to separate “being a trustee” from “who does the actual caregiving.” Being the trustee usually just means handling the money and should not be a huge lift. The bigger issue is “who does the caregiving and how much caregiving is going to be required?” Your post is too vague for us to know what level of support your brother will need. But this is what you need to focus on. Sure, you can hire caregivers, but they don’t show up, brother falls in the middle of the night, etc. My kid will end up in a Medicaid intermediate care facility. What she will need is someone trustworthy to stop in and make sure her care isn’t abominable. The reality is that her care will likely never be “great” in this type of facility. But I need someone there regularly to hopefully notice if she is being abused, not fed, not having her diaper changed, etc.[/quote]
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