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[quote=Anonymous]
To poster providing care for a DD with a cognitive disability, have you applied for a Developmental Disabilities Waiver in your state?  Is it possible for your DD to participate in an adult day program?  We have a DD with an intellectual disability who resides with us and things are going smoothly right now as she is out in the community working and volunteering on a part-time basis, but it does involve driving her as we do not quite trust paratransit with Covid as yet.  The issue we have is the long-term planning for the three of us as we age as there is not opportunity for her to move into a CCRC setting in the future as we may need it.  For her in the future when she is really older, an assisted living setting with a lot of activities might be appropriate, but she would not meet the age range of usually 55+ for quite a few years.

She has, in fact, just been approved for an in-home support waiver which at this point we do not really need except for the Respite part as I have been used to setting up her routine for several years since post high ended.  However, we know we need the funding for in-home as we grow older and for adult day programming, especially if she transitions to the home of one of her sisters.   For anyone who is a caregiver, it is very important to give yourself free time without any guilt.  If you are a couple then make sure each has time "off" and also if you are a woman, make sure that the usual home care tasks do not just fall to you.  Get help in the house even just once a month with the heavier work.  Have your husband learn how to cook, shop, do the laundry and run the vaccuum.  At the same time be sure you learn how your finances are set up, bills paid, where the important papers are if something happens to him.

For seniors, consult the local Office on Aging to see what day support services, financial grants for respite care and/or day program might be available.  Also contact local senior centers/Alzheimer groups to see if there are free support groups meeting some with sitting for the client.
As mentioned in other posts on this site do the research ahead to see what services for assisted, memory and skilled nursing are in your area and the cost.  If possible, sit down and get an idea of your parent(s) financial situation now and consult appropriate professional help to make the best decisions in future planning for them possible to your situation.
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