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[quote=Anonymous][quote=Anonymous]Our DC has had developmental delays since he was born and now as a toddler he still has some delays.  Recently a friend of mine suggested to look up Angelman Syndrome (she saw Colin Farrell talking about his son on Ellen) because our DC seems toahve some of the symptoms.  I looked it up and am afraid that he does have some of the symptoms (although we've taken him to Kennedy Krieger for blood work and it came back negative, but he wasn't tested for that).  I'm trying to make another appointment with them for a follow-up, but wanted to reach out to everyone and ask if your child or if you know anyone's child that has the Angelman Syndrome.  I've real a lot on the internet, but would love to hear anecdotes from actual parents.  I understand what it is, but would like to learn more about treatment, when/ how the child was diagnosed, what your day is like, what kind of childcare is your child in, etc.[/quote]

Very good friends have a child with it.

Sweetest child I've ever known, but she'll always be that way, which is the heartbreaking thing. Always smiling, but even as an adult, will be like a child in terms of intellect.

There are some physical challenges as well (seizures, that sort of thing). I think they used Easter Seals daycare for a while but have changed.

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