Reply to OT for 3 year old meltdowns? Or what do I try next?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]Jeez that is tough OP.  The challenges you describe with the meltdowns seems totally at odds with the dev ped blowing you off.  Some parents have a low threshold for meltdowns and bad behavior, and immediately worry their kids have "something" going on.  But given the list of all the assessments you've done, I feel like any good expert is going to see there is something more going on here than just typical 3 year old behavior.

Ultimately, I'd "guess" (obv not an expert - but just from our own experience and reading this forum for 8+ years) you eventually end up with one or more diagnoses of ADHD, ASD or anxiety - but some of those may not be easily diagnosable for many years.  For instance, lots of kids from this forum don't get the ASD diagnosis when evaluated at age 5, but ultimately at age 8 or 10 get a "HFA" diagnosis. We can debate whether those kids really have "ASD", but it's at least recognizing they probably have always had something going on that makes them neurodiverse.

With that whole list of assessments, obviously your parent-gut is screaming out to you that there's still something going on here that's not being addressed.  I'm not a "diagnosis shopper", but I would keep going to a dev ped, psychiatrist or neuropsych until I found someone to listen to me, that these aren't just normal 3 year old tantrums, but a kid that needs support.   [/quote]

Op here. I’m sure he has at least ADHD, though I know he’s too young for an official diagnosis. He might also have ASD, but so far that’s less clear.

I know our team of docs will write us referrals to whatever therapy we want-should I just ask for that?

We’ve also had genetic testing done and DS has a rare genetic disorder linked to severe epilepsy and ID (though his presentation has been unusual and he’s much less impacted than other kids with this diagnosis).

Despite all of this, I just can’t seem to figure out how to just get answers about how to parent my kid. We did OT when he was younger but it was not very helpful and more focused on fine motor.

Do I look for an OT that specializes in kids with ADHD?[/quote]

Did they administer ADOS at 27 mo old? I have a child with a very similar presentation (but only 1-2 step instructions) and we got ASD diagnosis. Perhaps ABA could be one of the options? If you have ASD on paper insurance pays for it, and at 3.5 he is still young enough for ESDM, which is a more naturalistic modality.[/quote]

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