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[quote=Anonymous]3.5 yo DS has epilepsy a speech delay and a mild developmental delay (he’s outgrown any fine or gross motor delays though so I’m not sure what this means now).

We are dealing with some difficult behaviors and I’m at a loss for what comes next. Examples:

-lots of meltdowns/tantrums. I’m talking level 10 inconsolable, lying on the floor. Sometimes just a few minutes long, other times this can go on for 20-30 minutes. Sometimes he seems to have clusters of tantrums where he melts down for 5-10 min, recovers for 5-10 min, then melts down again. These episodes can last a couple of hours.

-He doesn’t listen. Rarely. He does understand us (as we’ve seen him follow 2-3 step directions), but he just ignores us when we tell him to do things. He runs away from me in public.

-he’s very inattentive. He moves from one activity to another, is constantly grabbing anything and everything in sight.

Here’s what we’ve done:
-multiple developmental evaluations with a developmental pediatrician. This hasn’t been helpful. She just gives generic advice about boundaries, sleep, schedules, etc. 
- speech therapy. Speech has come a very long way but it hasn’t reduced tantrums like they said it would 
-autism evaluation with a neuropsychologist. He was 27 months at the time and they said he’s not autistic 
-he has an IEP and goes to an inclusive preschool, does very well there-no meltdowns so far
-I’ve read several books (Explosive Child, Supernanny), and taken courses from Dr. Becky and Janet Lansbury. 
-intense exercise, but this is complicated because he runs away from me on walks/runs/at the park

What do we try next? Do we need OT? sensory integration therapy? A different eval? ABA? Child psychologist? Do we just wait it out? Any other books you recommend?
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