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Reply to "Any adults with a periodic fever syndrome?"
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[quote=Anonymous]I am PP. I would think pediatrics would see a 19 year old, so don’t eliminate any of those recommendations. Unfortunately, it looks like the dr. We saw many years ago has retired. My daughter had PFAPA. We have also discovered she has 3 other rare conditions (connective tissue disease and autoimmune diseases). So I think anyone new to a pediatric fever condition needs to be aware that these kids often have multiple issues that are often very rare and it is often hard to find practitioners. It took us years to find a diagnosis for one condition. If you have a COVID long hauler, Peter Rowe at John’s Hopkins seems to be the way to go. https://www.hopkinsmedicine.org/profiles/details/peter-rowe[/quote]
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