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Reply to "Any adults with a periodic fever syndrome?"
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[quote=Anonymous][quote=Anonymous]My daughter had it and it was cured by removing her tonsils. There isn’t really anything you can do other than this or take steroids every time it happens. We saw a doctor at Georgetown who specialized in immune deficiency.[/quote] OP here. Was the Georgetown doctor strictly pediatric? This is for DD, a young adult. She was clinically diagnosed in another country with Familial Mediterranean fever, not PFAPA, so unfortunately removing her tonsils won't help. She does take colchicine, the first line medicine, and it has reduced the fevers from over 105 to the 102 to 103 range. The next step would be a biologic, one of two less common ones. We are awaiting results of her genetic tests for periodic fever mutations.[/quote]
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