Reply to Should a child with an intellectual disability be denied an organ transplant?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]You left out a big, important detail. She has a fatal condition. So, yes, I understand where the hospital is coming from. It's not worth risking someone else's life to give this girl 6months-1 year of poor quality of life. Her parents need to enjoy their time with her and not pursue invasive, temporary solutions.[/quote]

Her condition is not fatal if she gets a transplant.  You misinterpreted something.[/quote]

No, its not a permanent fix. She will die organ or not.[/quote]

Where are you seeing that she will die in six months to a year EVEN IF she gets a transplant?  That was not my impression at all.  She WILL die in six months to a year if she doesn't get a transplant.[/quote]

I read other articles...

http://www.huffingtonpost.com/lisa-belkin/denying-transplant_b_1207630.html

"Dr. Kurt Hirschhorn, a pediatrician and geneticist at The Mount Sinai School of Medicine, and one of the two researchers who identified Wolf-Hirschhorn Syndrome in the early 1960s. He was also the head of the Mount Sinai Hospital Ethics Committee for 30 years (and, as it happens, he"s been a mentor to my husband at Sinai, and we consider he and his wife our friends.) Kurt read Chrissy's story and I asked him, "Should Amelia be put on the donor list for a kidney transplant?:

No, he said."

...

"he would want to make sure that a potential living donor fully understood the personal risks of such a donation, and also understood that Amelia's life would be prolonged, but not saved, by the transplant" [/quote]

What's the difference between prolonging and saving her life?  What if it prolongs it by 5 or 10 years?  Does that make it worthwhile?  We might reasonably look at lots of people who receive transplants as having their lives "prolonged" rather than saved.  Just because this Hirschhorn doctor feels the same way as the docs at CHOP does not mean this belief is moral.

AND the parents were not so alarmed until they were told not just that she wouldn't be put on a list, but also that they couldn't have a family member donate her a kidney either.  THIS IS WRONG.  For fucks sake people.  It's eugenics.[/quote]

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