Reply to Should a child with an intellectual disability be denied an organ transplant?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]You left out a big, important detail. She has a fatal condition. So, yes, I understand where the hospital is coming from. It's not worth risking someone else's life to give this girl 6months-1 year of poor quality of life. Her parents need to enjoy their time with her and not pursue invasive, temporary solutions.[/quote]

Her condition is not fatal if she gets a transplant.  You misinterpreted something.[/quote]

No, its not a permanent fix. She will die organ or not.[/quote]

Where are you seeing that she will die in six months to a year EVEN IF she gets a transplant?  That was not my impression at all.  She WILL die in six months to a year if she doesn't get a transplant.[/quote]

I read other articles...

http://www.huffingtonpost.com/lisa-belkin/denying-transplant_b_1207630.html

"Dr. Kurt Hirschhorn, a pediatrician and geneticist at The Mount Sinai School of Medicine, and one of the two researchers who identified Wolf-Hirschhorn Syndrome in the early 1960s. He was also the head of the Mount Sinai Hospital Ethics Committee for 30 years (and, as it happens, he"s been a mentor to my husband at Sinai, and we consider he and his wife our friends.) Kurt read Chrissy's story and I asked him, "Should Amelia be put on the donor list for a kidney transplant?:

No, he said."

...

"he would want to make sure that a potential living donor fully understood the personal risks of such a donation, and also understood that Amelia's life would be prolonged, but not saved, by the transplant" [/quote]

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