Reply to Ready to move my dad with Parkinson's to a facility

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[quote=Anonymous][quote=Anonymous]Thanks, all. He basically cannot do any functions on his own other than feed himself, messily. He can sit in a chair but needs to be continually repositioned. He does not speak much, though once in a while he will smile when we joke with him.

It's heartbreaking and compounded so much by my mom's sadness and resentment as she tries to decide how to proceed. They would probably need to sell their house in order to move to an apartment or to put my dad in an expensive facility.

Has anyone worked with a geriatric care manager? This sounds like maybe someone who could help us go through options.[/quote]

Be prepared for things to progress very rapidly at this point. With my dad, we were in the process of trying to find a nursing home when he got a UTI and was hospitalized. He was discharged to in-home hospice and died about a month later. PD is a terrible disease. Your options are pretty limited: a) private health aides 24/7, which is crazy expensive, b) nursing/memory care facility, but depending on your needs this might not make sense because you might need to still pay for an aide if he needs eyes on him at all times, c) skilled nursing facility, which is one step down from a hospital and super expensive (way more than a standard nursing home). And unless you have he right long term care insurance or are destitute and qualify for Medicaid, Medicare covers none of this. [/quote]

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