Reply to has anyone had a child diagnosed with cystic fibrosis a little older, like 3 1/2 years old?

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Reply to "has anyone had a child diagnosed with cystic fibrosis a little older, like 3 1/2 years old?"

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[quote=Anonymous]Hi all,

In my research, it suggests that 70% of children with cystic fibrosis are diagnosed by age 2. Our child has some digestive and respiratory issues, and at 3.5 years old, it has been suggested that we do a sweat test to rule out CF. Our younger child had a sweat test because of another lung issue and is fine (NO CF) but because of that, I don't have a concern about the sweat test itself.

I just can't tell if this is a doctor being thorough re: my 3.5 year old and there is very little chance or if he is really concerned about this possibility for my son.

If you had a child diagnosed at 3, 4, etc., with CF, why didn't they catch it younger? How did your child present? Is there such a thing as mild CF? If so, does it always get worse? Obviously, if he does have it, so far the presentation has been fairly mild (only one pneumonia, 1x 6 week course of antiobiotics for upper respiratory infection, nicu-only one week, not discovered then-had basic newborn screening, chronic gi issues).

Thanks in advance, very much, for any guidance.[/quote]

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