Reply to Struggling lately-parenting is a slog-when will we turn the corner?

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[quote=Anonymous]As the parent of a kid with profound special needs, a lot is going to depend on what the outcomes look like for your youngest. I’ve been doing this for 12 years and here is what helps me. My second kid is easy also.

1. I have a more helpful husband. But honestly at those ages, he would have just turned the TV on also. This isn’t actually the worst thing in the world. Come to terms with that.

2. I work full time, have a full time nanny and have evening and weekend sitters. The fact is that my kid’s situation means I have a baby forever. We have to have someone with that kid at all times so we have someone here most of her waking hours as the “third man” so we can live a somewhat normal lifestyle. This actually has been more important as kid #2 has gotten older and wants to do family things that my special needs kid cannot participate in.

3. I’ve accepted that my special needs kids has to be in a variety of meds to balance things out. If one med is causing a behavioral problem, I strongly suggest talking to your doctor about some med that can help offset that. We had 18 months a few years ago where my kid screamed every waking moment of the day until we found the right meds.

4. Make sure you have a team of specialists that can help with whatever the issues are that your child has.

Clearly, my situation is extreme. I hope your is not as extreme, but I hope some of these suggestions are helpful.[/quote]

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