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Kids With Special Needs and Disabilities
Reply to "Hoping for a g-tube"
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[quote=Anonymous]Hi, my son is 18 months old and not 20lb quite yet. He fits the infantile anorexia profile to a "T". He is much more interested in everything else going on and doesn't care to eat much or drink much. He takes no more than 4oz from a cup per day no matter what I put in there. I can't do pediasure, smoothies etc because of this. (He still nurses 4-5 times per/day but my supply is very small. I am still nursing out of necessity!) Hi is active, inquisitive, has great motor skills, socially normal and is completely developmentally on target in every other way. The eating problem is not new, from a very young age there have been difficulties. I could only get him to nurse in a dark quiet room when falling asleep or first waking up from about age 6 months. He refused to eat baby food or be fed with a spoon. He still refuses to be fed with a spoon. My best luck is using my fingers and putting the food in his mouth. He can pick up food, use a spoon, and handle advanced textures because I have seen him do it before, but choses not to. He is interested in touching and exploring the food and sometimes eats a few bites (that's how I know he can do it!) but doesn't take in adequate nutrition by a long shot. He has been worked up by a ped GI and been seen at Children's. I have not found the method that has been suggested at Children's helpful in our situation. I used to think of a G-tube as a last resort, but now am hoping for one! It would give me peace of mind that my child is receiving the nutrition that he needs to grow and develop to his full potential until we are in a place where he can get adequate nutrition from oral feeding. Anyone else in a similar situation? Any g-tube moms out there? I am praying KKI will call back early next week. [/quote]
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