Reply to Talk to me re: eosinophilic esophagitis

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[quote=Anonymous]OP: I have EOE. It probably took 10 yrs to get dx.

Dx was done by counting eocinophiles in the esophagus upper, middle and lower part of it.

Treatment is imperfect and takes quite a bit of trial and error. There are things you can do now depending on how old kid is.

After dx I did these things
1. started taking a ppi 2x day (whatever is on the OTC package, double that). 
2. started swallowing a corticosteroid. I use flovent, which is an inhailer. There's another method to mix some nasty stuff with artificial sweetner and I think that's what kids start with.
3. elimination diet. Eliminated 7 common allergy foods (or was it 9) for 2 weeks and added them back. Through this horrific process (I was hungry ALL THE TIME) I discovered my food allergies by adding one back at a time. I added soy back first b/c it's in everything processed. Then seafood/shellfish, ect. I"m allergic to dairy and since dairy is already inflammatory to many humans, you might see a difference if you cut dairy from child's diet but you'd have to do calcium supplements...and probably others.

There is no drug for EOE yet so my treatment plan is not perfect. One blessing of covid is I controlled my diet more and have had less EOE symptoms.

Since Dx, I've had 9 upper GIs...about 1 a year. I've been to the ER 3 times. I had an emergency upper GI once to remove something stuck in my esophagus.  I have ... (sorry about this part) spit up and some of the finest restaurants in DC.

Good luck. I hope you find answers soon. My situation is not perfect but it's WAY better than before dx. [/quote]

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