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[quote=Anonymous][quote=Anonymous]PP this is all very helpful, thank you for taking the time to share.

We had him evaluated for a tongue tie at Children’s. The doctor and the PA both found and noted the tongue tie separately but the doctor didn’t think it would help. She was definitely dismissive of the “if you feel pain something is wrong” idea and noted that tongue ties are diagnosed 800% more than x decades ago. She wasn’t our first choice for ENT but the one everyone keeps recommending doesn’t take our insurance. Our pediatrician checked his neck and said no problems. We thought we noticed a preference for one side but my husband said it was left and I said right.

Maybe I’ll call next week and see if they still don’t take it (they seemed to indicate it was temporary until billing issues were worked out). I’d really like a second opinion but also don’t know how far to pursue and when it’s time to just soldier on. [/quote]

Pp here and ugh so sorry to hear your experience, though I think it’s very common. There definitely seems to be conflict within drs and others about tongue ties with some believing it is over diagnosed etc now. I will just say that I didn’t get my sons dealt with (because it was dismissed) and had to stop, while my two friends who attended the same support group as me and had an LC who really believed tongue ties can cause significant issues, went on to breastfeed over a year. So I wish I had pushed more and frankly paid out of pocket (mine was a similar thing in that I saw who was on my insurance)  to see someone who really addressed these issues. It’s anecdotal but yeah. Some initial things you can do: follow milkmatterspt on Instagram  and go through her stories to find some of the exercises to release tension, start trying them - it can’t hurt. They are very simple and I had friends learn them from Susan and find them helpful. I know pediatrician said no, and I don’t mean to sound anti physician because I am not at all but in my experience with these items they just drop the ball. They are good at the overall picture and not necessarily trained in these smaller things that can impact breastfeeding.

A couple other ideas - Susan runs two support groups through Virginia hospital center that are now virtual. They are free and you could pop on for some advice, the zoom links are on the VHC website. If you’re in VA you could also have the tongue tie assessed by a pediatric dentist experienced in tongue ties. The two I hear recommended are Dr. Jaju at smile wonders and Dr. Roca at Arlington smile center. [/quote]

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