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Reply to "Genetic disorder in your family? How to handle disclosure, etc?"
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[quote=Anonymous][quote=Anonymous]I’d pay out of pocket under a different name. The ACA could be repealed. [/quote] OP here. Cat's out of the bag with my insurance. Unintended consequence of the initial testing - biopsy of a skin lesion that I thought could be skin cancer. Since this is anonymous and someone asked, the condition is Hereditary Leiomyomatosis. Presents as skin lesions that come back positive for leiomyoma when biopsied. Also fibroids of a certain type - fibroids are relatively common so if you have a fibroid don't freak out. It's very unlikely you have this. My mother and I both had pretty serious fibroid issues - she had a hysterectomy in the '80's - major surgery for her. I got luckier and had a uterine artery embolization. [/quote]
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