Reply to Baby in NICU - unexplained heart rate decelerations

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[quote=Anonymous]We were supposed to be able to get our baby today from the Sibley special care nursery. He has been there five days - he’s small for gestational age and when he was born, he needed oxygen. After that his oxygen issue resolved but he was unable to keep his glucose levels stable and he also needed a feeding tube.  We were told we could bring him home today.  We had been waiting for a call to say he was ready to come home and his discharge paperwork was ready, but instead we received a call from the neonatologist saying that he had an unexplained heart rate deceleration and that he went pale when he was burped while feeding. They want to keep him another 48 hours at least.  The dr didn’t have any explanation other than “he may be less developed than his weeks of gestation suggest.”  The idea no one knows what is wrong and they will just observe him and then say “okay he hasn’t had an episode in a while so he’s free to go home” is frightening to me.

Has anyone had any experience with something like this?
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