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Reply to "Bulbar ALS, anyone?"
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[quote=Anonymous]My father passed away from ALS 11 years ago- he also had bulbar loss first. He had some luck with communicating using a magnadoodle (with a large grip added to the magnet pen) and later a chopstick with a laminated keyboard print-out. The disease progressed rapidly for my dad- he passed away less than 2 years after diagnosis. He was in hospice for several months and they were wonderful. It is terrible- make sure to take care of yourself as well- my mom was my dad’s primary caretaker and it was very hard on her. [/quote]
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