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[quote=Anonymous]I'm definitely pro genetic screening for all couples considering having children.  But I have had lots of experiences in genetic disease as I'll explain later.  The question you have to ask is if you still would do an IUI if a genetic disease was possible, or if you'd just move on to adoption or just not have children.  Of course, odds are you're probably just fine, but there is that chance.  Your odds will be the same whether or not you test and living in genetic ignorance and crossing your fingers isn't going to diminish the risk that you and your partner could be carriers.

My husband actually has CF and is the only one in his extended family to have the disease.  He's lived a healthy and happy life despite having this horrible disease.  I made sure to have a thorough CF genetic screening prior to us doing IVF though.   Whether or not a couple decides to still have children knowing that there's a very high chance of them having a child with a genetic disease is really up to their own personal beliefs.  But that being said, I think it's important to be informed before making any decision.  It also is medically beneficial to know about a risk of disease before hand for diagnosis and treatment.

Also, as the person above me posted, you can have false positives from newborn screenings due to being just a gene carrier.  We had this happen with our daughter and metabolic disorder.  Further testing showed she and I were just carriers, but we had one freaked out month waiting for results.  If she were to had have that condition, it definitely would've been good to know before birth as it requires constant feedings to avoid fataly low blood surgars.   We also found out after further genetic testing after that false positive that I'm a carrier for a pretty terrible neurodegenerative disease that thankfully my husband is also not a carrier for.

Insurance may cover it since covering a child w a disease would be $$.  If not, your clinic may charge you a discounted price (my clinic years ago said they just needed $100 in payment and we'd just make up the difference from what insurance paid out).  Also, something like 23 and Me can test  for common gene mutations and greatly rule out the possibility  of genetic disease (I think they test for the very common CF gene and even the metabolic disorder that I'm a carrier for).   [/quote]

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