Reply to Dominion vs Sheppard Pratt

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Does your daughter have Pandas?  The eating disorder plus the intrusive thoughts fit the profile.

I would say that keeping home, unless it has gotten life threatening is probably better than inpatient at her age. Most of these places don't really do a good job of separating the kids from the adults and the kids can pick up worse behaviors or feel traumatized from being locked away.

How about intensive outpatient or a partial hospitalization program where she gets to come home each day.
[/quote]

They ruled out pandas. It is frustrating that meds have not stabilized the anxiety aspect. We were hoping to have that under control from the current hospital. They think that taking her home will make it difficult by her refusal to bring her back for follow on treatment.

We asked about Johns Hopkins and were told that they don’t separate adults from kids and the topics in therapy are more adult oriented. It really sucks that there are very few and poor options. On top of it we are vegetarians and these places don’t have good vegetarian plans.

Any positive experiences from anyone?[/quote]

PANDAS is actually not that common. PANS is more common and can be brought on by lots of different viral and bacterial infections. If anxiety medications are not working I would be curious and want to rule out co infections and high levels of cytokines as a contributing cause. Have you tried an ibuprofen challenge? Round the clock ibuprofen at treatment doses for 5 days? If the anxiety/ eating disorder is being brought on by systemic inflammatory response (ie: PANS) you will see some small improvements with ibuprofen. This will be a clue.[/quote]

Can you please stay on topic vs. pushing your PANDAS agenda. [/quote]

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